petersuber<p>Update. "Massive, Unarchivable Datasets of Cancer, Covid, and Alzheimer's Research Could Be Lost Forever"<br><a href="https://www.404media.co/nih-archives-repositories-marked-for-review-for-potential-modification" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">404media.co/nih-archives-repos</span><span class="invisible">itories-marked-for-review-for-potential-modification</span></a><br>(<a href="https://fediscience.org/tags/paywalled" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>paywalled</span></a>) </p><p>"Almost two dozen repositories of research and public <a href="https://fediscience.org/tags/health" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>health</span></a> <a href="https://fediscience.org/tags/data" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>data</span></a> supported by the <a href="https://fediscience.org/tags/NIH" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>NIH</span></a> are marked for “review” under the <a href="https://fediscience.org/tags/Trump" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Trump</span></a> administration’s direction, and researchers and archivists say the data is at risk of being lost forever if the repositories go down. “The problem with archiving this data is that we can’t,” Lisa Chinn, Head of Research Data Services at the University of Chicago…Unlike other government datasets or web pages, downloading or otherwise archiving NIH data often requires a Data Use Agreement between a researcher institution and the agency, and those agreements are carefully administered through a disclosure risk review process."</p><p><a href="https://fediscience.org/tags/Censorship" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Censorship</span></a> <a href="https://fediscience.org/tags/DefendResearch" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>DefendResearch</span></a> <a href="https://fediscience.org/tags/Medicine" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Medicine</span></a> <a href="https://fediscience.org/tags/OpenData" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>OpenData</span></a> <a href="https://fediscience.org/tags/Takedowns" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Takedowns</span></a> <a href="https://fediscience.org/tags/Trump" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Trump</span></a> <a href="https://fediscience.org/tags/USPol" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>USPol</span></a> <a href="https://fediscience.org/tags/USPolitics" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>USPolitics</span></a></p>